A Family of Caregivers
- by Paul L.
- September 10, 2018
Paul L. is a paid Advocate for Teva Neuroscience, Inc.
My daughter is more than your average kid; she’s part of our family's RRMS team.
Being a caregiver for someone with relapsing-remitting MS has its challenges. I help manage my wife's RRMS symptoms and needs, and spend a little extra time being part of her caregiving team. Personally, I believe managing my wife’s RRMS is a team effort and since our daughter has been about 5 years old, she has been a part of our team.
Because RRMS is such a big part of our lives, including dealing with symptoms, walking in annual events, and raising money for the local chapters, we felt it was important to include our daughter early on. We knew we didn’t want to scare her about her mom’s health, but knew that she needed to be told, and that she would want to help.
My wife and I made sure we were telling our daughter the truth when she first started asking questions, but of course, we offered the simplest of details. Because my wife has great days, average days and, sometimes, difficult days, we wanted to make sure our child knew why, as well as what RRMS is and how we are going to manage it. We also wanted to make sure she knew we would address any issues, frustrations, anger or worries about her mom’s RRMS.
As she has grown, she continues to ask questions and learn more about RRMS, for instance, the symptoms and effects of her mom’s RRMS. She helps with daily activities and participates in volunteer efforts to raise local awareness and funds for advocacy organizations. When we participate in a walk or event, she is always there at a rest stop or the finish line to cheer us on. She has become a true advocate for people living with RRMS, and like anything that drives us, this has given her an additional sense of purpose, confidence, pride and self-satisfaction.
Having another caregiver in our house has provided additional and appreciated support. Now that she’s older, our daughter has truly helped us lighten the load of grocery shopping, errands around the house, and she even cooks the occasional meal for us. I know her acts of kindness and generosity help her in all of her relationships. She is part of our team and we know that together we are better.
COPAXONE® (glatiramer acetate injection) is a prescription medicine that is used to treat relapsing forms of multiple sclerosis (MS), to include clinically isolated syndrome, relapsing-remitting disease, and active secondary progressive disease, in adults.
Do not use COPAXONE® if you are allergic to glatiramer acetate or mannitol.